Primordial Dwarfism Webinar with Dr. Bober
At 13 years old, Sienna stands under four feet tall and weighs only 38 pounds. Anderson spoke with the twins and their parents to learn more about the challenges they face every day and what makes primordial dwarfism so unique.
If you were inspired by the twins and want to learn more about primordial dwarfism, characteristics and classifications, Michael Bober, MD, PhD, of the Nemours/Alfred I. duPont Hospital for Children in Wilmington, DE, who has a particular interest in skeletal dysplasias and primordial dwarfism, shares expert information in the below webinar....
For more information about Dr. Bober’s work, these unique conditions, and the Skeletal Dysplasia Program at the Nemours/Alfred I. duPont Hospital for Children, go to Nemours.org.
The two foundations mentioned in the video above are: Potentials Foundation and Walking with Giants Foundation.